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About Us
We have created this website to bring people who are affected and involved with Morquio B (MPS IV B) together so that they may form contacts, share information, and help us in finding a treatment for this rare disease.
It is our goal to raise funds for research and develop a better understanding of this disease. It is our hope that this research will lead to a treatment.
It is unclear how many people are actually affected with Morquio B because until recently, there has been no registry. We have just successfully funded the first formal registry for Morquio B, and we are here to be a link for those who are affected to some very knowledgeable researchers who are already studying this disease.
Please visit www.morquiob.org to view the new registry for Morquio B and to become an important part of finding a treatment.
If you wish to be a part of our efforts, let us know how we can contact you.
Together we will find a treatment.
Please click on the link below to watch a wonderful speech made by Arthur, an adult living with Morquio B, at our Second Annual Gala Fundraiser “An Evening in Italy”
News
We continue to have hope! June 1, 2013
Thank you to The University of British Columbia for recognizing our efforts in the Spring Edition of the UBC Medicine Magazine. Please click on the above link to read the article.
Journey of Hope 4th Gala Dinner March 23, 2013
We’re on our way! The date has been set for the Journey of Hope 4th Annual Gala Dinner Silent Auction for Morquio B. The date is Oct 19th, 2013 and the location is The Executive Airport Plaza Hotel and Conference Centre, Richmond, BC. Join us this year for our exciting “Mad Men” theme and enjoy the musical talents of The S’Martinis while raising funds and awareness for a treatment for Morquio B.
A Truly Enchanted Evening! November 24, 2012
Thank you to everyone who attended and contributed to “An Enchanted Evening” Third Annual Fundraiser for Morquio B. Over 200 people were in attendance and we raised $35,000 for research! Thank you to Dr. Eduard Paschke for coming from Austria to speak about your research efforts. We are so very excited to be a part of working towards a treatment for Morquio B.