by renzo | Mar 26, 2024 | News
The aim of this project is to gather the stories and lived experiences of patients and caregivers within the Morquio B and GM1 gangliosidosis community to create a core list of medical and quality-of-life outcomes. Our team wishes to empower individuals from the...
by renzo | Mar 4, 2024 | News
A Patient Case Study has just been released by Dr. Anthony Cooper and Dr. Sylvia Stockler, BCCH, highlighting the diagnostic journey of a patient with Morquio B. Gholamian Morquio B Disease – A Case...
by renzo | Feb 7, 2024 | News
Dr. Stockler and her research team are currently in the process of obtaining ethics approval for an international Morquio B and GM1 gangliosidosis patient and caregiver focus groups to gather input on patient meaningful outcomes. Morquio B and GM1 gangliosidosis are...
by renzo | Feb 1, 2024 | News
A Patient Case Study is soon to be released by Dr. Anthony Cooper and Dr. Sylvia Stockler, BCCH, highlighting the diagnostic journey of a patient with Morquio...
by renzo | Aug 10, 2018 | News
Thank you to all who participated! Click here to read the results -> Morquio B Patient Caregiver Survey
by renzo | Apr 3, 2018 | News
Dr. Stockler is ready to move forward with further studies for Morquio B. She has asked that I request all patients affected with Morquio B in Europe to contact her team or message me. In order to establish a study site in this area, she needs to know the...
